Category Archives: Experience

My Last Day …

Have been having a terribly long stint of insomnia lately but I have been resting, laying in bed listening to music and prone dancing – yes just made that up.

Heard this beautiful song last in the wee hours of today.  The English lyrics have been translated below – but as most of us know, direct translation never captures the same meaning.  It’s a beautifully stirring song.

As if it were my last day,
I’m going to live with a sincere love
And show those close to me how much I love them.

As if it were my last day,
I’m going to fight for my dreams,
Living without fear and treasuring every minute.
I’m not going to wait until tomorrow because all I have is the present.

If there wasn’t much time, I would stay and take a moment
To show you that I love you and that I am fully content that I have you.
And if your joy depended on me, I would give everything I can to you to make this day the best day in our life.

If this was my last chance to look at you again,
I would make this moment the most important in your memory,
Because in the times of difficulty and stress of this life, we miss the details we later wish we could remember.
And then regret that we’ve forgotten these experiences, and mourn that we cannot recreate them.

If there wasn’t much time, I would stay and take a moment
To show you that I love you and that I am fully content that I have you.
And if your joy depended on me, I would give everything I can to you,
And make this day the best day in our life.

I would enjoy all that God has given me
friends, family and love,
and I’ll make this day the best of my life.


Just venting…

Life. Life sometimes really sucks. Period.

Being a divorced, single, childless woman in my 40s battling cancer yet again is just a sad state to find myself in…again.

Divorced Female, Going Bald, Undergoing Chemo and Radiation, Going Through Menopause, Weight Fluctuations, Mood swings…

Oh yeah, isn’t that the first profile you would click on if you were searching for the love of your life or even just a new ‘friend’ online? Dating in itself – or, I should say, finding someone to date – is never easy. Finding someone when you happen to be bald, going through chemo and/or making daily trips to the hospital for chemotherapy and radiation makes it a zillion times more complicated. Trust me, I know. I have tried it. I am not sure why I have tried it but I did. Logically, I knew it was not the best idea. But heck, I guess I am bored, optimistic, stupid?!

Going through cancer treatment can be really tough for a single woman. You may not have a friend or family member who can be there for you like a partner. You may also worry about how a current or future partner will react when they find out you’ve had cancer.

Perhaps the most private scar left by cancer is the damage done to your view of yourself. My self-image is completely distorted at times. I constantly find myself worried if I can ever catch up, keep up or even get going on most days. I wonder how active I can be and even how long I will live. If I ever even allow myself to think about remarrying one day, I obsess about if I should ever involve a partner in such an uncertain future.

In the past, concerns about having children also affected my relationships. I became infertile many years ago with my first bout of cancer. So alone I am.

I have been single most of my life. And I live by this quote by prixie: “Single is not a status. It is a word that describes a person who is strong enough to live and enjoy life without depending on others.”

Yes I am scared. Tired of not having someone special around. But the reality is I am my own person, and if I can’t enjoy being single, how can I enjoy being with someone else?

The most difficult thing for me about going through cancer yet again is doing it single, alone. In the past, I had a much larger, strong support network so I was hardly ever alone. But now I find myself more alone. At a time when closeness is so much more important, I feel so utterly singularly alone. During this time, my treatment, I am trying so hard to be brave and not complain too much. But staying quiet and calm, doesn’t prevent me from being lonely sometimes and longing for someone to hold me at night and whisper that everything is going to be alright. Or even just to take me to dinner, make me laugh, smile and forget about cancer for a little while, make me feel desirable. I have friends who take pity on me and take me out for dinner, and make me laugh but its just sadly not quite the same thing. Sometimes I just so desperately want to ignore the cancer.

Nearly everyone I encounter who has or has had cancer – friends, people at the hospital, family, people in books and on TV – were either married or in a serious relationship when they were diagnosed; or children with caring parents. Not me. I am in the very vulnerable single state and not having someone to hold my hand every step of the way, makes me wistful, if not angry sometimes. But instead of just being jealous of others in relationships with supportive loving partners, feeling sorry for myself, I keep trying online dating. It makes me feel somewhat normal.

Within minutes of posting a new photo online, I had e-mails from men ready to shower me with attention. Of course, most weren’t exactly my type, but you need to kiss a lot of frogs to find your prince, right?! lol

I guess I am lucky somewhat … I have had some really interesting email exchanges, but alas have not found the man of my dreams during treatment. Still, dating during treatment restores my self-confidence, reassures me that I am still attractive, and distracts me enough moments at a time. The way I see it, is that everyone is unique and carries baggage of some kind and this is only one part of me, I guess. Just tired today of carrying all this baggage. Tired of my hand dangling alone.

So yes … Life. Life sometimes really sucks. Period.


Today … Never Forget Indeed!

I see so many people posting images in remembrance of 9/11, the words #NeverForget trending….candles being lit, and flags are waving. But ask yourselves, what does this truly all mean?

I sit and breathe in the silence
I sit and breathe in the pain
Moments…
Sitting by myself.
Waiting…

Yes …9/11. May we never forget. I feel my loss each and every day; even on those days when I smile, laugh, enjoy myself. I try harder each day to live my life to the fullest, not just for me, but for all of those I have lost. They will never have another chance to smile, laugh, cry …geesh, not even enjoy a glass of wine.

So, let’s always never forget…we have loved ones still live, with us. Hug them. Tell them you love them. Make time for them. Smile through your tears.
Thank a soldier. Volunteer. Do something other than post an image. Make someone smile today. Life is ever fleeting, hours, turn into days. Moments turn into memories. Tomorrow turns into yesterday.

I remember walking out into the beautiful sunshine and seeing the gigantic American flag above the Bear Stearns building that forever day etched into my soul, waving in the breeze so beautiful, so proud, so hopeful. And although my life forever changed, my safe protective bubble had been badly bruised and my heart broken, that flag reminded me that in the midst of the greatest loss lies the potential for the greatest miracles. That hope is never lost. That hate never gets the last word. My sadness won’t keep me down. I was reminded today by a fellow follower on here that I need to wrap my arms around the gift that grief has given me, and that is so true. So, thank you!

I know how life can seem cruel and life at times just isn’t fair and how true freedom comes at a cost … but through all odds I have never given up nor has America given up that dream. So yes…Never Forget … today is another chance at making a difference, taking strength in grief.

flag


I know I will see you again …

I get so more melancholy and turn more quietly inward – especially between August through September. I have lost so many people I truly loved. For the past 13 years, I dread today. I dread the anniversary and the repeated replays of the planes, the impacts, the fireballs and the collapsing towers.

It truly is like ripping off a Band-Aid … but my heart feels this open wound. Today, 13 years ago, I lost four true friends, one my irreplaceable heart, my soul mate.

The days will always be brighter because he existed. The nights will always be darker because he’s gone. And no matter what anybody says about grief, and about time healing all wounds, the truth is, there are certain sorrows that never fade away until the heart stops beating and the last breath is taken. Always my heart ♥mm♥ …(Excerpt from Tiffanie DeBartolo, God-Shaped Hole)

I have come to realize that destiny can hurt a person as much as it can bless them, and I find myself wondering why – out of all the people in all the world I could ever have loved – I had to fall in love with someone who was taken away from me.

One day he was there and then all of a sudden, he is gone. There’s less of him each passing year. And you wonder where that part went – if it’s living somewhere, outside of you, and you keep thinking maybe you’ll get it back. And then you realize…it’s just gone.

Many say it’s easier to burn than to build; many say it’s easier to hurt than to heal…But I say you lose when you give up what you love…And I’ve lived my life without that long enough.

I hold pieces of him; I hold them so tight that they eventually become pieces of myself that am still learning to grow from but never away from. I hold onto them so tight that they eventually become the only pieces that can hold my shaky bones together. They become the only pieces that can keep this broken heart of mine held together…

Have you ever thought that if one thing hadn’t happened, a whole set of things never would have either? Like dominoes in time, a single event kicked off an unstoppable series of changes that gained momentum and spun out of control, and nothing was ever the same again. Don’t ever doubt that a mere second can change your life forever. It can. It has. Everything does really happen for a reason.

I’ve got no more illusions…I know I’ll see you again…but for today, I am allowing myself to fully experience the full impact of my loss. Grieving all over again. Grief…I am following it, crying when I want to, yelling at God, screaming into my pillow, and avoiding most people and definitely the news.

Grief is itself the only medicine I need right now. And anyone who doesn’t understand this or who can’t accept, stay away from me. So fake better stay away from me.

“After a while you learn the subtle difference between holding a hand and chaining a soul. You learn that kisses aren’t contracts and presents aren’t promises. You learn that loving doesn’t mean leaning and company doesn’t always mean security, and you learn that even sunshine burns if you get too much. After a while you learn to build all your dreams on today because tomorrows ground is too uncertain for dreams, and futures have a way of falling down in mid-flight. After a while you learn to accept your defeats with your head held with the grace of a woman and not the grief of a child. After a while you learn to plant your own garden and decorate your own soul instead of waiting for someone else to bring you flowers. And you learn that you really are strong, that you really do have self worth, and you can endure, and you learn and learn, with every “goodbye” you learn…” (Veronica A. Shoffstall)

“I am not the happiest person. In fact, in the battle between joy and misery, I’d say that the latter often seems to prevail. I don’t like this, and every day I refuse, for the eighty millionth time, to put up with another minute of it. But the world does what it does, and I often find it disagreeable. After all these years, I’m kind of resigned to that. But I do have one thing on my side: I have enormous faith. And hope. I am not speaking of the kind you find in church or in the afterlife or in heaven or in the Saint James Bible or in the Hare Krishna’s that we all encounter changing flights in the airports of the world, I am speaking of a simple faith that says that one way or another, no matter how many times I stumble and stub my big toe, somehow life is going to work itself out.” (Elizabeth Wurtzel)

candles


If I Don’t Tell You Now …

One of my favorite lines from my early movie today:

Look, that night was as much a surprise to me as it was to you. But being with you was like going to a place that I had never been before. And after you fell asleep I just laid there, staring up at those cheap fluorescent stars you have stuck on your ceiling, and – after a while they just started forming a pattern, this weird glow-in-the-dark pattern that linked together our entire relationship. And for the first time everything seemed clear to me – like one logical progression. It felt like you and I were the greatest plan ever made and I had nothing to do with it. Being with you made me feel that maybe I didn’t have to keep planning anymore because it felt like I was actually living. And that for once in my life I wouldn’t have to work so hard at being happy. That it could just happen. Nothing will ever hurt me as much as your reaction to that same experience.

Love this song:

Ooh ooh oh yeah
I kept it inside for the longest time and I can’t keep keeping it
All this love that’s inside of my heart
Maybe it’s safer not to say that I care
Maybe this road won’t lead me anywhere
But if I don’t tell you now (if I don’t tell you now)
I may never get the chance again (I may never get the chance again)
To tell you that I need you, tell you what I’m feeling
If I keep these feelings in
And if I don’t say the words (if I don’t say the words)
How will you hear what’s inside my heart
How will you know then
If I don’t tell you now

Ohhh
I’d do anything to be in your dreams and I can’t stand standing by
With this dream that’s inside my heart(heart)
Maybe I’m only gonna make a mistake
And there’s a chance maybe my heart will break

But if I don’t tell you now (if I don’t tell you now)
I may never get the chance again (I may never get the chance again)
To tell you that I need you, tell you what I’m feeling
If I keep these feelings in
And if I don’t say the words (if I don’t say the words)
How will you hear what’s inside my heart
How will you know then
If I don’t tell you now

Ooooooh
How will you know you’re inside my soul
Oh it’s driving me crazy
Cause you don’t see, you’re the world to me
I’m so afraid to see
The way that I feel for you

If I don’t tell you now (if I don’t tell you now)
I may never get the chance again (I may never get the chance again)
To tell you that I need you, tell you what I’m feeling
If I keep these feelings in
And if I don’t say the words (if I don’t say the words)
How will you hear what’s inside my heart
How will you know then
If I don’t tell you now

Ohhhh ohhhh
If I don’t tell you now…


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